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Organizations Diseases, Disorders & Medical National Fabry Disease Foundation

National Fabry Disease Foundation

Fiscal year ending 2025. Filed on October 14, 2025.

144 E King St 1419
Hillsborough, North Carolina 27278

National Fabry Disease Foundation (EIN: 20-2944028) has filed an IRS Form 990 since fiscal year 2018. In its fiscal year 2025 IRS Form 990 filing, National Fabry Disease Foundation, a 501(c)(3) charitable organization, reported compensation for 2 out of 4 total employees. Among the employees shown here, the average compensation is $116,155. The highest compensated employee at National Fabry Disease Foundation is Gerald Walter with fiscal year 2025 compensation of $126,174.

Revenue, expenses, and employee compensation

Revenue

$592,005

Expenses

$738,955

Employee compensation

$325,165
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Gerald Walter
Chair
$126,174
$122,499 No related comp$3,675
Casey A McKenna
Senior Program Manager
$106,136
$101,136 No related comp$5,000

Benchmark Employee Compensation

Non-Employee Board Members

Derek Halberg
Vice Chair
Elizabeth Gaffin
Director
Melanie Wilson
Treasurer
Steven Rothman
Director
Tracy Myatt
Secretary

Mission Statement

TO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND PROVIDED AN OPPORTUNITY FOR TREATMENT IN TIME TO AVOID A DIMINISHED QUALITY-OF-LIFE AND LIFE-THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES, TO PHYSICIANS, AND TO THE PUBLIC; TO PROVIDE SUPPORT AND ASSISTANCE TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES; AND TO CONDUCT AND PROMOTE RESEARCH TO IMPROVE MANAGEMENT AND TREATMENT FOR FABRY DISEASE.

Revisions to this organization profile

October 14, 2025:
2025 National Fabry Disease Foundation 990 filed
February 24, 2025:
2024 National Fabry Disease Foundation 990 filed
October 13, 2023:
2023 National Fabry Disease Foundation 990 filed

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