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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations National Organization for Albinism and Hypopigmentation

National Organization for Albinism and Hypopigmentation

Fiscal year ending 2024. Filed on November 14, 2025.

PO Box 959
East Hampstead, New Hampshire 03826

National Organization for Albinism and Hypopigmentation (EIN: 23-2265173) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, National Organization for Albinism and Hypopigmentation, a 501(c)(3) charitable organization, reported compensation for 1 out of 2 total employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$731,189

Expenses

$690,433

Employee compensation

$120,132
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Karen Bly
Executive Director
$0

Benchmark Employee Compensation

Non-Employee Board Members

Andrew Sartorius
Board Member
Brandi Darby Through 6424
Board Member
Donna Appell
Board Member
Donte Mickens
Chair
Elliot Ostrove
Board Member
Emma Brinkley
Executive CM
Kayla Hamlin
Board Member
Kris Baker
Board Member
Mine Nisanci Garlin
Board Member
Rebecca Elizabeth Drury
Board Secretary
Rosalind Isom
Board Member
Sonja Harris Eff 6424
Board Vice Chair

Mission Statement

NOAH'S MISSION IS TO ACT AS A CONDUIT FOR ACCURATE AND AUTHORITATIVE INFORMATION ABOUT ALL ASPECTS OF LIVING WITH ALBINISM AND TO PROVIDE A PLACE WHERE PEOPLE WITH ALBINISM AND THEIR FAMILIES IN THE U.S. AND CANADA CAN FIND ACCEPTANCE, SUPPORT AND FELLOWSHIP.

Revisions to this organization profile

November 14, 2025:
2024 National Organization for Albinism and Hypopigmentation 990 filed
November 15, 2024:
2023 National Organization for Albinism and Hypopigmentation 990 filed
November 14, 2023:
2022 National Organization for Albinism and Hypopigmentation 990 filed

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