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Organizations Diseases, Disorders & Medical National Tay-Sachs & Allied Diseases Ass

National Tay-Sachs & Allied Diseases Ass

Fiscal year ending 2025. Filed on November 11, 2025.

2001 Beacon St 204
Brighton, Massachusetts 02135

National Tay-Sachs & Allied Diseases Ass (EIN: 13-1912877) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2025 IRS Form 990 filing, National Tay-Sachs & Allied Diseases Ass, a 501(c)(3) charitable organization, reported compensation for 1 out of 8 total employees. Among the employees shown here, the average compensation is $169,733. The highest compensated employee at National Tay-Sachs & Allied Diseases Ass is Kathleen Flynn with fiscal year 2025 compensation of $169,733.

Revenue, expenses, and employee compensation

Revenue

$1,397,598

Expenses

$1,448,700

Employee compensation

$506,441
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kathleen Flynn
Chief Executive Officer
$169,733
$169,733 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Abby Rogers
Director
Amber Franzen
Director
Bonnie Davis
Director
Carla Steckman
Director
Dawn Laney
Director
Deborah Sanders
Director
Gerry Cox
Director
Jamie Ring
Director
Jonathan Katz
Director
Jonathan Lawrence
Vice President
Lauren Celano
Director
Lisajane Romer
Secretary

Mission Statement

NTSAD LEADS THE WORLDWIDE FIGHT TO TREAT AND CURE TAY-SACHS, CANAVAN, GM1, AND SANDHOFF DISEASES BY DRIVING RESEARCH, FORGING COLLABORATIION, AND FOSTERING COMMUNITY, SUPPORTING FAMILIES IS THE CENTER OF EVERYTHING WE DO.

Revisions to this organization profile

November 11, 2025:
2025 National Tay-Sachs & Allied Diseases Ass 990 filed
April 15, 2025:
2024 National Tay-Sachs & Allied Diseases Ass 990 filed
May 14, 2024:
2023 National Tay-Sachs & Allied Diseases Ass 990 filed

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