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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Neurofibromatosis Inc. Northeast

Neurofibromatosis Inc. Northeast

Fiscal year ending 2020. Filed on October 8, 2021.

9 Bedford Street
Burlington, Massachusetts 01803

Neurofibromatosis Inc. Northeast (EIN: 04-3013709) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2020 IRS Form 990 filing, Neurofibromatosis Inc. Northeast, a 501(c)(3) charitable organization, reported compensation for 1 out of 7 total employees. Among the employees shown here, the average compensation is $89,310. The highest compensated employee at Neurofibromatosis Inc. Northeast is Karen Peluso with fiscal year 2020 compensation of $89,310.

Revenue, expenses, and employee compensation

Revenue

$439,880

Expenses

$484,116

Employee compensation

$224,818
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Karen Peluso
Executive Director
$89,310
$86,710 No related comp$2,600

Benchmark Employee Compensation

Non-Employee Board Members

Alexandra Powers Cellucci
Director
Andres Lessing
Director
John Manth
Director
John Shea
Director
John Thomson
Director
Justin Jordan
Director
Lori Ryan
Chair
Melissa Shea Malerba
Secretary and Director
Nicole Ullrich, M.D., Ph.D.
Director
Patrick Callahan
Director
Robert Klouda
Director
Robert Ryan
Treasurer and Director

Mission Statement

NEUROFIBROMATOSIS, INC. NORTHEAST IS COMMITTED TO ADVANCING RESEARCH INTO THE CAUSES, TREATMENT, AND CURE OF NEUROFIBROMATOSIS. THE ORGANIZATION RAISES FUNDS TO SUPPORT SCIENTIFIC RESEARCH, PROVIDES VITAL SUPPORT SERVICES TO INDIVIDUALS LIVING WITH THE CONDITION AND THEIR FAMILIES, AND HELPS SUSTAIN CLINICS DEDICATED TO THE DIAGNOSIS AND CARE OF NEUROFIBROMATOSIS PATIENTS. THROUGH EDUCATION AND OUTREACH, THE ORGANIZATION ALSO WORKS TO INCREASE PUBLIC AWARENESS AND UNDERSTANDING OF THE DISEASE.

Revisions to this organization profile

November 14, 2025:
2024 Neurofibromatosis Inc. Northeast 990 filed
November 15, 2024:
2023 Neurofibromatosis Inc. Northeast 990 filed
December 20, 2023:
2022 Neurofibromatosis Inc. Northeast 990 filed

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