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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Philanthropy, Voluntarism & Grantmaking PCDH19 Alliance

PCDH19 Alliance

Fiscal year ending 2017. Filed on November 14, 2018.

926 A 212 Diablo Ave
Novato, California 94945

PCDH19 Alliance (EIN: 45-4020102) has filed an IRS Form 990 since fiscal year 2017. In its fiscal year 2017 IRS Form 990 filing, PCDH19 Alliance, a 501(c)(3) charitable organization, reported compensation for 5 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$110,539

Expenses

$63,053

Employee compensation

—
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Leslie Henkel
Board Secretary
$0
Julie Walters
Board President
$0
Karin Wells-Kilpatrick
Board Vice President
$0
Susan Taylor
Board Member
$0
Heather Fryman
Board Cfo/Treasurer
$0

Benchmark Employee Compensation

Mission Statement

OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT.

Revisions to this organization profile

November 17, 2025:
2024 PCDH19 Alliance 990 filed
May 31, 2024:
2023 PCDH19 Alliance 990 filed
November 16, 2023:
2022 PCDH19 Alliance 990 filed

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