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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Progressive Familial Intrahepatic Cholestasis

Progressive Familial Intrahepatic Cholestasis

Fiscal year ending 2024. Filed on July 10, 2025.

PO Box 551
Stanton, Kentucky 40380

Progressive Familial Intrahepatic Cholestasis (EIN: 83-1084501), also known as contd Advocacy and Resource Ne, has filed an IRS Form 990 since fiscal year 2019. In its fiscal year 2024 IRS Form 990 filing, Progressive Familial Intrahepatic Cholestasis, a 501(c)(3) charitable organization, reported compensation for 1 out of 5 total employees. Among the employees shown here, the average compensation is $71,000. The highest compensated employee at Progressive Familial Intrahepatic Cholestasis is Emily Ventura with fiscal year 2024 compensation of $71,000.

Revenue, expenses, and employee compensation

Revenue

$352,401

Expenses

$502,308

Employee compensation

$209,495
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Emily Ventura
Co-Founder Executive Director
$71,000
$71,000 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Charmaine Gravener
Director
Erik Lontok
Director
Erin Hovey
Secretary
Hayley Watts
Treasurer
Tara Kearns
Vice-President Co- Founder
Walter Perez
President

Mission Statement

To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

Revisions to this organization profile

July 10, 2025:
2024 Progressive Familial Intrahepatic Cholestasis 990 filed
July 9, 2024:
2023 Progressive Familial Intrahepatic Cholestasis 990 filed
October 16, 2023:
2022 Progressive Familial Intrahepatic Cholestasis 990 filed

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