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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Pulmonary Fibrosis Foundation

Pulmonary Fibrosis Foundation

Fiscal year ending 2024. Filed on March 21, 2025.

230 East Ohio Street 500
1 College Hall Room 211
Chicago, Illinois 60611

Pulmonary Fibrosis Foundation (EIN: 84-1558631) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Pulmonary Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 10 out of 43 total employees. Among the employees shown here, the average compensation is $184,820. The highest compensated employee at Pulmonary Fibrosis Foundation is Scott Staszak with fiscal year 2024 compensation of $341,001.

Revenue, expenses, and employee compensation

Revenue

$8,276,217

Expenses

$9,009,001

Employee compensation

$4,241,412
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Scott Staszak
President and Chief Executive Officer
$341,001
$330,382 No related comp$10,619
Seth Klein
Chief Development Officer
$209,798
$202,946 No related comp$6,852
Jessica Shore
Senior Vice President, Clinical Affairs and Quality
$181,407
$175,210 No related comp$6,197
William Schmidt
CEO - TERM / Director
$180,370
$174,402 No related comp$5,968
Janet Bianchetta
Chief Financial Officer
$169,703
$148,400 No related comp$21,303
Zoe Bubany
Vice President, Board and External Relations
$168,911
$147,927 No related comp$20,984
Jennifer Mefford
Vice President, Corporate Partnerships
$158,846
$153,360 No related comp$5,486
Katherine Bein
Vice President, Advocacy and Programs
$158,140
$132,680 No related comp$25,460
Mary Kiener
Senior Director, HR and Admin
$145,620
$131,540 No related comp$14,080
Franck Rahaghi
PAST President and CEO - TERM
$134,405
$127,225 No related comp$7,180

Benchmark Employee Compensation

Non-Employee Board Members

David McNinch
Chair
Devi Kumar-Nambiar, Jd, Mba
Director
Heather Kagel
Director
Jeff Harris
Director
Julie Halston
Director
Kenneth Fang, M.D.
Director
Laurie Chandler, Cfp
Vice Chair and Treasurer
Martin Attwell
Director
Patricia Rosa
Secretary
Pj Kamani
Director
Susan Jacobs, Rn, Ms
Director
Terence Hales
Director

Contractors

Lc Williams & Associates
Public Relations
$146,245
Cornerstone Government Affairs Inc.
Lobbying
$120,000
Matthew D Brett Substance Strategic Visu
Writing and Graphic Design
$105,037

Mission Statement

TO ACCELERATE THE DEVELOPMENT OF NEW TREATMENTS AND ULTIMATELY A CURE FOR PULMONARY FIBROSIS. UNTIL THIS GOAL IS ACHIEVED, THE PFF IS COMMITTED TO ADVANCING IMPROVED CARE OF PATIENTS WITH PF AND PROVIDING UNEQUALED SUPPORT AND EDUCATION RESOURCES FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH CARE PROVIDERS.

Revisions to this organization profile

March 21, 2025:
2024 Pulmonary Fibrosis Foundation 990 filed
April 11, 2024:
2023 Pulmonary Fibrosis Foundation 990 filed
March 31, 2023:
2022 Pulmonary Fibrosis Foundation 990 filed

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