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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Medical Research Rare Cancer Research Foundation

Rare Cancer Research Foundation

Fiscal year ending 2024. Filed on October 29, 2025.

703 Foster Street
Durham, North Carolina 27701

Rare Cancer Research Foundation (EIN: 46-3405526) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Rare Cancer Research Foundation, a 501(c)(3) charitable organization, reported compensation for 8 out of 10 total employees. Among the employees shown here, the average compensation is $140,234. The highest compensated employee at Rare Cancer Research Foundation is Marshall Thompson with fiscal year 2024 compensation of $194,903.

Revenue, expenses, and employee compensation

Revenue

$1,773,373

Expenses

$2,240,471

Employee compensation

$1,204,406
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Marshall Thompson
President
$194,903
$189,510 No related comp$5,393
Robin Kageyama
Director DATA PLA
$167,665
$162,277 No related comp$5,388
Amber Smith
Biobank MANA
$150,012
$150,000 No related comp$12
Susan Horrell
Director Strategi
$144,566
$139,166 No related comp$5,400
Kathryn Kay Coleman
PROD Enginee
$136,164
$130,977 No related comp$5,187
Barbara van Hare
PRES of PAT
$119,709
$119,409 No related comp$300
Benjamin David Kamphaus
Technical FE
$106,647
$102,597 No related comp$4,050
Hana Littleford
Clinical DAT
$102,202
$97,702 No related comp$4,500

Benchmark Employee Compensation

Non-Employee Board Members

Chris Heery
Chair
Keith Laabs
Director
Ryan Pripstein
Director

Contractors

X Sector Labs LLC
Consultanting
$114,843

Mission Statement

THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES.

Revisions to this organization profile

October 29, 2025:
2024 Rare Cancer Research Foundation 990 filed
November 5, 2024:
2023 Rare Cancer Research Foundation 990 filed
July 5, 2023:
2022 Rare Cancer Research Foundation 990 filed

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