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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Education Rare Disease Company Coalition Inc.

Rare Disease Company Coalition Inc.

Fiscal year ending 2024. Filed on July 30, 2025.

200 Massachusetts Avenue NW
Washington, District of Columbia 20001

Rare Disease Company Coalition Inc. (EIN: 86-2999172) has filed an IRS Form 990 since fiscal year 2021. In its fiscal year 2024 IRS Form 990 filing, Rare Disease Company Coalition Inc., a 501(c)(6) business league, reported compensation for 0 out of 0 total employees.

Revenue, expenses, and employee compensation

Revenue

$595,425

Expenses

$953,918

Employee compensation

$0
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

No compensated employees were reported for this year.

Non-Employee Board Members

Amanda Malakoff
Board Member
Ben Harshbarger
Board Member
Chris Porter
Treasurer
Curt Oltmans
Chair
Cyndi Goss Board Member
FROM 11/2024 to 12/2024
Davelyn Hood
Board Member - Until 09/2024
Deirdre Parsons
Board Member
Del Lebel
Vice Chair
Diane Berry
Member, Commercial At-Large
Eric Endicott
Board Member
Francesca Tedesco
Board Member
Gina Cioffi
Board Member

Contractors

Kpm Group DC
Government Affairs and Coalition Management
$587,744

Mission Statement

THE MISSION OF THE RARE DISEASE COMPANY COALITION IS TO STIMULATE DEVELOPMENT OF AND ACCESS TO RARE DISEASE TREATMENTS.

Revisions to this organization profile

July 30, 2025:
2024 Rare Disease Company Coalition Inc. 990 filed
November 14, 2024:
2023 Rare Disease Company Coalition Inc. 990 filed
November 15, 2023:
2022 Rare Disease Company Coalition Inc. 990 filed

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