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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Health Care Rett Syndrome Research Trust Inc.

Rett Syndrome Research Trust Inc.

Fiscal year ending 2024. Filed on July 15, 2025.

67 Under Cliff Road
Trumbull, Connecticut 06611

Rett Syndrome Research Trust Inc. (EIN: 26-0687439) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Rett Syndrome Research Trust Inc., a 501(c)(3) charitable organization, reported compensation for 4 out of 8 total employees. Among the employees shown here, the average compensation is $218,750. The highest compensated employee at Rett Syndrome Research Trust Inc. is Timothy J Freeman with fiscal year 2024 compensation of $220,000.

Revenue, expenses, and employee compensation

Revenue

$9,307,309

Expenses

$11,731,465

Employee compensation

$1,227,852
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Timothy J Freeman
Chief Development Officer
$220,000
$220,000 No related compNo other comp
Monica Coenraads
Chief Executive Officer
$220,000
$220,000 No related compNo other comp
Jana Se von Hehn
Chief Scientific Officer
$220,000
$220,000 No related compNo other comp
Robert Deans
Chief Technology Officer
$215,000
$215,000 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Adrian Bird
Trustee
Alba Tull
Trustee
Amy Gilliand
Trustee
Brad Zelinger
Trustee
Brian Whitmer
Trustee
Heidi Epstein
Vice Chair
Ingrid Harding
Co-Founder and Trustee
Lawrence Mattis
Secretary
Marci Valner
Treasurer
Rachael Stevenson
Trustee
Rachel Rothschild
Trustee
Stephanie Bohn
Trustee

Contractors

Edrain Colina
Marketing
$154,360

Mission Statement

THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.

Revisions to this organization profile

July 15, 2025:
2024 Rett Syndrome Research Trust Inc. 990 filed
July 2, 2024:
2023 Rett Syndrome Research Trust Inc. 990 filed
May 11, 2023:
2022 Rett Syndrome Research Trust Inc. 990 filed

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