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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Health Care Rett Syndrome Research Trust Inc.

Rett Syndrome Research Trust Inc.

Fiscal year ending 2020. Filed on May 17, 2021.

67 Under Cliff Road
Trumbull, Connecticut 06611

Rett Syndrome Research Trust Inc. (EIN: 26-0687439) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2020 IRS Form 990 filing, Rett Syndrome Research Trust Inc., a 501(c)(3) charitable organization, reported compensation for 5 out of 11 total employees. Among the employees shown here, the average compensation is $200,224. The highest compensated employee at Rett Syndrome Research Trust Inc. is Monica Coenraads with fiscal year 2020 compensation of $259,967.

Revenue, expenses, and employee compensation

Revenue

$14,024,428

Expenses

$3,066,720

Employee compensation

$1,302,198
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Monica Coenraads
Chief Executive Officer
$259,967
$220,000 No related comp$39,967
Tim Freeman
Chief Development Officer
$220,000
$220,000 No related compNo other comp
Jana von Hehn
Research Director
$185,000
$185,000 No related compNo other comp
Sharon Lynch
Associate Director of Research
$171,154
$171,154 No related compNo other comp
Randall Carpenter
Chief Medical Officer
$165,000
$165,000 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Adrian Bird
Trustee
Alba Tull
Trustee
Anthony Schoener
Chair
Brad Zelinger
Trustee
Brian Whitmer
Trustee
Heidi Epstein
Vice Chair
Ingrid Harding
Co-Founder and Trustee
Lawrence Mattis
Secretary
Marc Tesler
Trustee
Marci Valner
Treasurer
Rachael Stevenson
Trustee
Rachel Rothschild
Trustee

Mission Statement

THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.

Revisions to this organization profile

July 15, 2025:
2024 Rett Syndrome Research Trust Inc. 990 filed
July 2, 2024:
2023 Rett Syndrome Research Trust Inc. 990 filed
May 11, 2023:
2022 Rett Syndrome Research Trust Inc. 990 filed

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