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Organizations Health Care Rett Syndrome Research Trust Inc.

Rett Syndrome Research Trust Inc.

Fiscal year ending 2023. Filed on July 2, 2024.

67 Under Cliff Road
Trumbull, Connecticut 06611

Rett Syndrome Research Trust Inc. (EIN: 26-0687439) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2023 IRS Form 990 filing, Rett Syndrome Research Trust Inc., a 501(c)(3) charitable organization, reported compensation for 4 out of 8 total employees. Among the employees shown here, the average compensation is $202,083. The highest compensated employee at Rett Syndrome Research Trust Inc. is Monica Coenraads with fiscal year 2023 compensation of $220,000.

Revenue, expenses, and employee compensation

Revenue

$8,523,815

Expenses

$12,338,304

Employee compensation

$1,287,803
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Monica Coenraads
Chief Executive Officer
$220,000
$220,000 No related compNo other comp
Timothy Freeman
Chief Development Officer
$220,000
$220,000 No related compNo other comp
Jana von Hehn
Chief Scientific Officer
$203,333
$203,333 No related compNo other comp
Randall Carpenter
Chief Medical Officer
$165,000
$165,000 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Adrian Bird
Trustee
Alba Tull
Trustee
Anthony Schoener
Chair
Brad Zelinger
Trustee
Brian Whitmer
Trustee
Heidi Epstein
Vice Chair
Ingrid Harding
Co-Founder and Trustee
Lawrence Mattis
Secretary
Marc Tesler
Trustee
Marci Valner
Treasurer
Rachael Stevenson
Trustee
Rachel Rothschild
Trustee

Mission Statement

THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.

Revisions to this organization profile

July 15, 2025:
2024 Rett Syndrome Research Trust Inc. 990 filed
July 2, 2024:
2023 Rett Syndrome Research Trust Inc. 990 filed
May 11, 2023:
2022 Rett Syndrome Research Trust Inc. 990 filed

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