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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Share and Care Cockayne Syndrome Network Inc.

Share and Care Cockayne Syndrome Network Inc.

Fiscal year ending 2020. Filed on November 16, 2021.

PO Box 282
Watterford, Virginia 20197

Share and Care Cockayne Syndrome Network Inc. (EIN: 01-0557037) has filed an IRS Form 990 from fiscal year 2017–2020. In its fiscal year 2020 IRS Form 990 filing, Share and Care Cockayne Syndrome Network Inc., a 501(c)(3) charitable organization, reported compensation for 5 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$17,512

Expenses

$5,663

Employee compensation

$0
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Brent Smith
Board Member
$0
Jacqueline Arias Clark
President and Chief Executive Officer
$0
Haylee Carroll
Vice President
$0
Seth Zimmerman
Board Member
$0
Veronica Cuevas
Secretary
$0

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

To promote awareness of Cockayne syndrome and trichothiodystrophy, to educate and support physicians, research centers, and organizations addressing the cause of diagnosis while also collaborating with researchers and physicians to find treatments and the cure for Cockayne syndrome and Trichothiodystrophy, and to assist in support of those suffering from CS and TTD and their families.

Revisions to this organization profile

November 16, 2021:
2020 Share and Care Cockayne Syndrome Network Inc. 990 filed
January 11, 2021:
2019 Share and Care Cockayne Syndrome Network Inc. 990 filed
November 15, 2019:
2018 Share and Care Cockayne Syndrome Network Inc. 990 filed

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