Shine Syndrome Foundation

Revenue, expenses, and employee compensationIRS Form 990 totals for revenue, expenses, and employee compensation (salaries, other compensation, and employee benefits).

Mission Statement

Our mission is to improve the lives of individuals with DLG4-related Synaptopathy by supporting research, developing treatments and therapies, and providing a community of support. We understand the challenges that families face when dealing with this rare disease, and we are committed to making a difference. By collaborating with researchers, healthcare professionals, and other organizations, we aim to accelerate medical advances focused on the treatment of DLG4 Synaptopathy.