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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Human Services Shwachman-Diamond Syndrome Foundation

Shwachman-Diamond Syndrome Foundation

Fiscal year ending 2020. Filed on November 24, 2021.

106 Hillside Drive PO Box 6723
Florence, Kentucky 41022

Shwachman-Diamond Syndrome Foundation (EIN: 43-1709945) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2020 IRS Form 990 filing, Shwachman-Diamond Syndrome Foundation, a 501(c)(3) charitable organization, reported compensation for 12 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$78,849

Expenses

$97,754

Employee compensation

$10,728
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Carolina Cordova
Director
$0
Mary Balint
Secretary
$0
Pamela Miller
Executive Director
$0
Scott Miller
Director
$0
Bryan Sample
Treasurer
$0
Nicole Shen
Director
$0
Christian del Re
Director
$0
Jenni Wachter
Director
$0
Michelle Grenell
Director
$0
Stephanie Gregoretti
Director
$0
Savannah Lillywhite
Director
$0
Joan Mowery
Acting PRES
$0

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

RAISING AWARENESS OF AND SUPPORT FOR THE SHWACHMAN-DAIMOND SYNDROME DISEASE. THIS IS DONE THROUGH EDUCATIONAL CONFERENCES AND THE PUBLICAITON OF PERIODALCS SUCH AS NEWSLETTERS AND BROUCHURES. RESEARCH GRANTS ARE ALSO AWARDED FOR THE STUDY OF THE SYNDROME.

Revisions to this organization profile

July 14, 2025:
2024 Shwachman-Diamond Syndrome Foundation 990 filed
August 12, 2024:
2023 Shwachman-Diamond Syndrome Foundation 990 filed
November 10, 2023:
2022 Shwachman-Diamond Syndrome Foundation 990 filed

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