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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Medical Research Soft Bones Incthe US

Soft Bones Incthe US

Fiscal year ending 2024. Filed on September 9, 2025.

141 Hawkins Place 267
Boonton, New Jersey 07005

Soft Bones Incthe US (EIN: 26-4619055) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Soft Bones Incthe US, a 501(c)(3) charitable organization, reported compensation for 5 out of 5 total employees. Among the employees shown here, the average compensation is $125,000. The highest compensated employee at Soft Bones Incthe US is Denise M Goodbar with fiscal year 2024 compensation of $125,000. Soft Bones Incthe US changed its name from Soft Bones Incthe US Hypophosphatsia Foundation in 2022.

Revenue, expenses, and employee compensation

Revenue

$526,669

Expenses

$512,217

Employee compensation

$294,295
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Denise M Goodbar
Executive Director
$125,000
$125,000 No related compNo other comp
Heidi Floyd
Secretary
$0
Karen Carolonza
Vice President
$0
Deborah Fowler
President
$0
Michelle Labruno
Treasurer
$0

Benchmark Employee Compensation

Non-Employee Board Members

Adam Grenker, Esq
Director
Dr Brenda Ziegler
Director
Rob Moskow
Director
Scott Nettune
Director

Mission Statement

TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.

Revisions to this organization profile

September 9, 2025:
2024 Soft Bones Incthe US 990 filed
September 5, 2024:
2023 Soft Bones Incthe US 990 filed
May 15, 2023:
2022 Soft Bones Incthe US 990 filed

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