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Organizations Medical Research The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration

Fiscal year ending 2025. Filed on October 16, 2025.

2700 Horizon Drive 120
King OF Prussia, Pennsylvania 19406

The Association for Frontotemporal Degeneration (EIN: 41-2073220) has filed an IRS Form 990 since fiscal year 2017. In its fiscal year 2025 IRS Form 990 filing, The Association for Frontotemporal Degeneration, a 501(c)(3) charitable organization, reported compensation for 7 out of 64 total employees. Among the employees shown here, the average compensation is $231,571. The highest compensated employee at The Association for Frontotemporal Degeneration is Susan L-J Dickinson with fiscal year 2025 compensation of $350,014.

Revenue, expenses, and employee compensation

Revenue

$14,420,554

Expenses

$11,559,795

Employee compensation

$6,363,009
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Susan L-J Dickinson
Chief Executive Officer
$350,014
$320,026 No related comp$29,988
Mitch Appleson
Chief Operating Officer
$283,585
$255,015 No related comp$28,570
Penny Dacks
SR Director of Scientific Initiatives
$244,063
$226,491 No related comp$17,572
Sharon Denny
SR Director of Programs
$200,290
$174,174 No related comp$26,116
Phillip John Weichel
SR Director of Advancement
$200,203
$157,933 No related comp$42,270
Peter Witzleb
Information Technology Director
$174,899
$168,866 No related comp$6,033
Shana Dodge
Director of Research Engagement
$167,945
$152,910 No related comp$15,035

Benchmark Employee Compensation

Non-Employee Board Members

Abrar Tanveer
Director
David Pfeifer
Director (EFF 5/3/25)
Don Newhouse
Director
Gail Anderson
Vice Chair
Girish Patangay
Director (EFF 5/3/25)
Halima Amjad
Director
Helen-Ann Comstock
Director
Jary Larsen
Director (Thru 5/4/25)
Jill Goldman
Director
Joe Esposito
Director (EFF 5/3/25)
Joseph Marquez
Director
Julie Kelly
Treasurer

Contractors

Precon
AV for Annual Education Conference
$211,632
Meriplex Solutions LLC
IT Consultant
$111,685
Corez
Venue
$101,376

Mission Statement

PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.

Revisions to this organization profile

October 16, 2025:
2025 The Association for Frontotemporal Degeneration 990 filed
November 13, 2024:
2024 The Association for Frontotemporal Degeneration 990 filed
November 8, 2023:
2023 The Association for Frontotemporal Degeneration 990 filed

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