Compensation 990
OrganizationsEmployeesBoard MembersGrantsContractorsTop RankingsPricing

Stay updated on 990 organization compensation

© Civic Register LLC

Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

About•Report a discrepancy•Your privacy choices
Organizations Medical Research The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration

Fiscal year ending 2024. Filed on November 13, 2024.

2700 Horizon Drive 120
King OF Prussia, Pennsylvania 19406

The Association for Frontotemporal Degeneration (EIN: 41-2073220) has filed an IRS Form 990 since fiscal year 2017. In its fiscal year 2024 IRS Form 990 filing, The Association for Frontotemporal Degeneration, a 501(c)(3) charitable organization, reported compensation for 7 out of 55 total employees. Among the employees shown here, the average compensation is $222,361. The highest compensated employee at The Association for Frontotemporal Degeneration is Susan L-J Dickinson with fiscal year 2024 compensation of $326,881.

Revenue, expenses, and employee compensation

Revenue

$13,139,120

Expenses

$11,526,939

Employee compensation

$5,424,380
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Susan L-J Dickinson
Chief Executive Officer
$326,881
$299,604 No related comp$27,277
Mitch Appleson
Chief Operating Officer
$270,016
$239,433 No related comp$30,583
Penny Dacks
SR Director of Scientific Initiatives
$231,078
$215,668 No related comp$15,410
Christine Rogers Stevens
Director of Finance (Thru 9/24)
$208,376
$182,806 No related comp$25,570
Sharon Denny
SR Director of Programs
$187,441
$163,623 No related comp$23,818
Peter Witzleb
Information Technology Director
$167,522
$162,345 No related comp$5,177
Benjamin Freeman
Director of DEV and COMM (Thru 1/24)
$165,214
$160,117 No related comp$5,097

Benchmark Employee Compensation

Non-Employee Board Members

Abrar Tanveer
Director
David Pfeifer
Director (Thru 5/4/24)
Don Newhouse
Director
Gail Anderson
Secretary
Halima Amjad
Director
Helen-Ann Comstock
Director
Jary Larsen
Director
Jill Goldman
Director (EFF 5/4/24)
Joseph Marquez
Director
Julie Kelly
Treasurer
Kathy Mele
Director
Kim Torres
Chair

Contractors

Precon
AV for Annual Education Conference
$167,813
Corez
Venue
$155,917

Mission Statement

PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.

Revisions to this organization profile

October 16, 2025:
2025 The Association for Frontotemporal Degeneration 990 filed
November 13, 2024:
2024 The Association for Frontotemporal Degeneration 990 filed
November 8, 2023:
2023 The Association for Frontotemporal Degeneration 990 filed

Get an email when new compensation information is released for The Association for Frontotemporal Degeneration

Be the first to know when new IRS Form 990 data is published for this organization.

Related Jobs

View more jobs
Powered by Talroo
Report a discrepancy →