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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Philanthropy, Voluntarism & Grantmaking The Barth Syndrome Foundation

The Barth Syndrome Foundation

Fiscal year ending 2024. Filed on July 8, 2025.

2005 Palmer Avenue 1033
Larchmont, New York 10538

The Barth Syndrome Foundation (EIN: 22-3755704) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, The Barth Syndrome Foundation, a 501(c)(3) charitable organization, reported compensation for 2 out of 6 total employees. Among the employees shown here, the average compensation is $215,165. The highest compensated employee at The Barth Syndrome Foundation is Emily Milligan with fiscal year 2024 compensation of $248,133.

Revenue, expenses, and employee compensation

Revenue

$1,940,887

Expenses

$2,093,891

Employee compensation

$840,854
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Emily Milligan
Executive Director
$248,133
$227,314 No related comp$20,819
Lindsay Marjoram
Research Director
$182,196
$174,980 No related comp$7,216

Benchmark Employee Compensation

Non-Employee Board Members

Andrew Buddemeyer Term 24
Board Member
Brandi Dague
Secretary
Bruce Develle
Board Member
Florence Mannes Term 24
Board Member
James Baffa
Vice Chair
Jonathan Stokes
Board Member
Katherine McCurdy
Chair
Mark Greene
Treasurer
Megan Branagh
Board Member
Michelle Florez
Board Member
Miriam Greenberg
Board Member
Nina Russell
Board Member

Mission Statement

1)TO PROMOTE AWARENESS OF BARTH SYNDROME; 2) TO EDUCATE AND SUPPORT PHYSICIANS, RESEARCH CENTERS, AND ORGANIZATIONS ADDRESSING THE CAUSES, DIAGNOSIS, TREATMENTS AND CURE OF BARTH SYNDROME; AND 3) TO ASSIST IN THE SUPPORT OF THOSE SUFFERING FROM BARTH SYNDROME AND THEIR FAMILIES.

Revisions to this organization profile

July 8, 2025:
2024 The Barth Syndrome Foundation 990 filed
June 13, 2024:
2023 The Barth Syndrome Foundation 990 filed
August 2, 2023:
2022 The Barth Syndrome Foundation 990 filed

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