The Familial Hypercholesterolemia Foundation
Fiscal year ending 2024. Filed on October 1, 2025.
5548 First Coast Hwy 204
Fernandina Beach, Florida 32034
The Familial Hypercholesterolemia Foundation (EIN: 45-4597425), also known as Family Heart Foundation, has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, The Familial Hypercholesterolemia Foundation, a 501(c)(3) charitable organization, reported compensation for 6 out of 22 total employees. Among the employees shown here, the average compensation is $258,650. The highest compensated employee at The Familial Hypercholesterolemia Foundation is Katherine Wilemon with fiscal year 2024 compensation of $403,436.
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Mission Statement
The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.
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