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Organizations Diseases, Disorders & Medical The Familial Hypercholesterolemia Foundation

The Familial Hypercholesterolemia Foundation

Fiscal year ending 2018. Filed on October 1, 2019.

959 E Walnut Street No 220
Pasadena, California 91106

The Familial Hypercholesterolemia Foundation (EIN: 45-4597425), also known as The Fh Foundation, has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2018 IRS Form 990 filing, The Familial Hypercholesterolemia Foundation, a 501(c)(3) charitable organization, reported compensation for 3 out of 21 total employees. Among the employees shown here, the average compensation is $211,272. The highest compensated employee at The Familial Hypercholesterolemia Foundation is Katherine Wilemon with fiscal year 2018 compensation of $320,672.

Revenue, expenses, and employee compensation

Revenue

$3,098,812

Expenses

$5,685,786

Employee compensation

$1,781,345
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Katherine Wilemon
Chief Executive Officer and Board Member
$320,672
$308,654 No related comp$12,018
Amanda Sheldon
Vice President, Marketing and Communications
$172,606
$163,685 No related comp$8,921
Catherine Ahmed
Director or Outreach
$140,538
$133,846 No related comp$6,692

Benchmark Employee Compensation

Non-Employee Board Members

Allison Jamison
Board Member
Barry Brooks
Board Member
Dan Rader
Board Member
Joshua Knowles
Board Member
Maria Sophocles
Board Member
Mary McGowan
Board Member
Michael Shapiro
Secretary/Treasurer (Start 4/18)
Seth Baum
Secretary and Treasurer
Stacey Lane
Chair-Elect
William Neal
Chair

Contractors

Dcri
Data Management
$801,988
Atomo
Consulting
$555,079
David Zuzick
Consulting
$210,776
Zilker Technology LLC
Website and Seo
$157,300
DiVito Consulting
Consulting
$150,350

Mission Statement

The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.

Revisions to this organization profile

October 1, 2025:
2024 The Familial Hypercholesterolemia Foundation 990 filed
November 4, 2024:
2023 The Familial Hypercholesterolemia Foundation 990 filed
August 4, 2023:
2022 The Familial Hypercholesterolemia Foundation 990 filed

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