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Organizations Diseases, Disorders & Medical The Familial Hypercholesterolemia Foundation

The Familial Hypercholesterolemia Foundation

Fiscal year ending 2023. Filed on November 4, 2024.

5548 First Coast Hwy 204
Fernandina Beach, Florida 32034

The Familial Hypercholesterolemia Foundation (EIN: 45-4597425), also known as Family Heart Foundation, has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2023 IRS Form 990 filing, The Familial Hypercholesterolemia Foundation, a 501(c)(3) charitable organization, reported compensation for 6 out of 17 total employees. Among the employees shown here, the average compensation is $246,802. The highest compensated employee at The Familial Hypercholesterolemia Foundation is Katherine Wilemon with fiscal year 2023 compensation of $452,099.

Revenue, expenses, and employee compensation

Revenue

$6,535,608

Expenses

$6,362,500

Employee compensation

$2,598,084
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Katherine Wilemon
Chief Executive Officer and Board Member
$452,099
$438,365 No related comp$13,734
Hilliard Paige
Chief Innovation Officer
$363,326
$338,536 No related comp$24,790
M McGowan
CMO
$231,176
$214,639 No related comp$16,537
Diane MacDougall
Vice President of Science and Research
$174,420
$174,420 No related compNo other comp
Catherine Ahmed
Vice President, Policy
$142,076
$141,418 No related comp$658
Susan Seim
Creative Director
$117,716
$117,716 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Allison Jamison
Treasurer
Brian Mittman
Board Member
Courtney Riley
Board Member
Dan Rader
Chair (End Dec.)
Joshua Knowles
Chair
Keith Ferdinand
Board Member (Start Jan.)
Seth Baum
Vice Chair (Start Jan.)
Stacey Lane
Board Member (End Dec.)

Contractors

Bass Berry Sims Plc
Legal
$384,284
Atomo Inc
Consulting
$360,000
Merryman Communications Inc.
Media Outreach/Advertising
$305,008
Source Heathcare Analytics LLC
Lab Data Sets
$238,393
Lighthouse Consulting LLC
Contract Labor
$172,427

Mission Statement

The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.

Revisions to this organization profile

October 1, 2025:
2024 The Familial Hypercholesterolemia Foundation 990 filed
November 4, 2024:
2023 The Familial Hypercholesterolemia Foundation 990 filed
August 4, 2023:
2022 The Familial Hypercholesterolemia Foundation 990 filed

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