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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical The Fibrolamellar Cancer Foundation

The Fibrolamellar Cancer Foundation

Fiscal year ending 2023. Filed on November 15, 2024.

20 Horseneck Lane 2nd Floor
Greenwich, Connecticut 06830

The Fibrolamellar Cancer Foundation (EIN: 27-0341021) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2023 IRS Form 990 filing, The Fibrolamellar Cancer Foundation, a 501(c)(3) charitable organization, reported compensation for 3 out of 5 total employees. Among the employees shown here, the average compensation is $179,612. The highest compensated employee at The Fibrolamellar Cancer Foundation is Kurt Losert with fiscal year 2023 compensation of $279,981.

Revenue, expenses, and employee compensation

Revenue

$2,960,135

Expenses

$5,485,040

Employee compensation

$751,053
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kurt Losert
Chief Executive Officer
$279,981
$273,188 No related comp$6,793
Dr Mark Furth
Scientific Director
$166,427
$159,650 No related comp$6,777
John Hopper
Director(Retired 05/23)
$92,429
$88,718 No related comp$3,711

Benchmark Employee Compensation

Non-Employee Board Members

Anne Adler
Director
Charles A Davis
Co-Chair
Charles W Beermann
Director
Craig Martin
Director
David Wermuth
Director
Derek Gilchrist
Secretary and Director
Guy Levy
Director
John Craig
Director
Leslie Graves
Treasurer
Marna O Davis
Co-Chair
Tal Friedman
Director

Mission Statement

FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS.

Revisions to this organization profile

November 16, 2025:
2024 The Fibrolamellar Cancer Foundation 990 filed
November 15, 2024:
2023 The Fibrolamellar Cancer Foundation 990 filed
November 14, 2023:
2022 The Fibrolamellar Cancer Foundation 990 filed

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