The Ftd Disorders Registry LLC

Fiscal year ending 2025. Filed on November 11, 2025.

2700 Horizon Drive 120
King OF Prussia, Pennsylvania 19406

The Ftd Disorders Registry LLC (EIN: 47-3601782) has filed an IRS Form 990 between fiscal years 2016 and 2025. In its fiscal year 2025 IRS Form 990 filing, The Ftd Disorders Registry LLC, a 501(c)(3) charitable organization, reported compensation for 4 out of 5 total employees. Among the employees shown here, the average compensation is $261,091. The highest compensated employee at The Ftd Disorders Registry LLC is Susan Dickinson with fiscal year 2025 compensation of $350,014.

Revenue, expenses, and employee compensation

Revenue

$871,164

Expenses

$892,503

Employee compensation

$561,410

Reported Compensated Employees

Susan Dickinson

Director-Aftd Member Repre

$350,014

$0 from org$320,026 from related$29,988 other

Mitch Appleson

Chief Operating Officer and Secretary

$283,585

$0 from org$255,015 from related$28,570 other

Penny Dacks

President

$244,063

$0 from org$226,491 from related$17,572 other

Carrie Milliard

Registry Director

$166,700

$149,435 from orgNo related comp$17,265 other

Non-Employee Board Members

Laura Mitic

Director-Bluefield Member

$145,000

$0 from org$145,000 from relatedNo other comp

Mission Statement

THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.

Revisions to this organization profile

November 11, 2025:

2025 The Ftd Disorders Registry LLC 990 filed

November 13, 2024:

2024 The Ftd Disorders Registry LLC 990 filed

November 14, 2023:

2023 The Ftd Disorders Registry LLC 990 filed

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