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Organizations Diseases, Disorders & Medical The Ftd Disorders Registry LLC

The Ftd Disorders Registry LLC

Fiscal year ending 2023. Filed on November 14, 2023.

2700 Horizon Drive 120
King OF Prussia, Pennsylvania 19406

The Ftd Disorders Registry LLC (EIN: 47-3601782) has filed an IRS Form 990 between fiscal years 2016 and 2025. In its fiscal year 2023 IRS Form 990 filing, The Ftd Disorders Registry LLC, a 501(c)(3) charitable organization, reported compensation for 6 employees. Among the employees shown here, the average compensation is $246,250. The highest compensated employee at The Ftd Disorders Registry LLC is Rodney Pearlman with fiscal year 2023 compensation of $368,000.

Revenue, expenses, and employee compensation

Revenue

$1,600,782

Expenses

$759,009

Employee compensation

$463,809
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Rodney Pearlman
Director
$368,000
$0 $368,000 No other comp
Susan Dickinson
Director-Aftd Member Representative
$330,335
$0 $302,707 $27,628
Penny Dacks
President
$223,458
$0 $207,660 $15,798
Christine Stevens
Chief Financial Officer
$206,898
$0 $180,146 $26,752
Mitch Appleson
Chief Operating Officer and Secretary
$181,141
$0 $169,049 $12,092
Dianna Wheaton Thru Jan 2023
Registry Director
$167,668
$118,188 No related comp$49,480

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.

Revisions to this organization profile

November 11, 2025:
2025 The Ftd Disorders Registry LLC 990 filed
November 13, 2024:
2024 The Ftd Disorders Registry LLC 990 filed
November 14, 2023:
2023 The Ftd Disorders Registry LLC 990 filed

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