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Organizations Diseases, Disorders & Medical The Ftd Disorders Registry LLC

The Ftd Disorders Registry LLC

Fiscal year ending 2024. Filed on November 13, 2024.

2700 Horizon Drive 120
King OF Prussia, Pennsylvania 19406

The Ftd Disorders Registry LLC (EIN: 47-3601782) has filed an IRS Form 990 between fiscal years 2016 and 2025. In its fiscal year 2024 IRS Form 990 filing, The Ftd Disorders Registry LLC, a 501(c)(3) charitable organization, reported compensation for 6 employees. Among the employees shown here, the average compensation is $270,628. The highest compensated employee at The Ftd Disorders Registry LLC is Rodney Pearlman Thru 83123 with fiscal year 2024 compensation of $420,118.

Revenue, expenses, and employee compensation

Revenue

$1,031,597

Expenses

$955,293

Employee compensation

$537,814
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Rodney Pearlman Thru 83123
Director-Bluefield Member Representative
$420,118
$0 $343,000 $77,118
Susan Dickinson
Director-Aftd Member Representative
$326,851
$0 $299,574 $27,277
Mitch Appleson
Chief Operating Officer and Secretary
$270,016
$0 $239,433 $30,583
Penny Dacks
President
$231,078
$0 $215,668 $15,410
Christine Stevens
CFO (Thru 9/24)
$208,376
$0 $182,806 $25,570
Carrie Milliard
Registry Director
$167,327
$76,816 $64,950 $25,561

Benchmark Employee Compensation

Non-Employee Board Members

Laura Mitic Eff 9123
Director-Bluefield Member Representative
$101,728
$0 $101,728 No other comp

Mission Statement

THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.

Revisions to this organization profile

November 11, 2025:
2025 The Ftd Disorders Registry LLC 990 filed
November 13, 2024:
2024 The Ftd Disorders Registry LLC 990 filed
November 14, 2023:
2023 The Ftd Disorders Registry LLC 990 filed

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