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Organizations Diseases, Disorders & Medical The Ftd Disorders Registry LLC

The Ftd Disorders Registry LLC

Fiscal year ending 2025. Filed on November 11, 2025.

2700 Horizon Drive 120
King OF Prussia, Pennsylvania 19406

The Ftd Disorders Registry LLC (EIN: 47-3601782) has filed an IRS Form 990 between fiscal years 2016 and 2025. In its fiscal year 2025 IRS Form 990 filing, The Ftd Disorders Registry LLC, a 501(c)(3) charitable organization, reported compensation for 4 out of 5 total employees. Among the employees shown here, the average compensation is $261,091. The highest compensated employee at The Ftd Disorders Registry LLC is Susan Dickinson with fiscal year 2025 compensation of $350,014.

Revenue, expenses, and employee compensation

Revenue

$871,164

Expenses

$892,503

Employee compensation

$561,410
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Susan Dickinson
Director-Aftd Member Repre
$350,014
$0 $320,026 $29,988
Mitch Appleson
Chief Operating Officer and Secretary
$283,585
$0 $255,015 $28,570
Penny Dacks
President
$244,063
$0 $226,491 $17,572
Carrie Milliard
Registry Director
$166,700
$149,435 No related comp$17,265

Benchmark Employee Compensation

Non-Employee Board Members

Laura Mitic
Director-Bluefield Member
$145,000
$0 $145,000 No other comp

Mission Statement

THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.

Revisions to this organization profile

November 11, 2025:
2025 The Ftd Disorders Registry LLC 990 filed
November 13, 2024:
2024 The Ftd Disorders Registry LLC 990 filed
November 14, 2023:
2023 The Ftd Disorders Registry LLC 990 filed

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