The Jansen DE Vries Syndrome Foundation Inc.

Revenue, expenses, and employee compensationIRS Form 990 totals for revenue, expenses, and employee compensation (salaries, other compensation, and employee benefits).

Mission Statement

THE FOUNDATION IS FOCUSED ON PROVIDING EDUCATION AND RESOURCES TO BOTH FAMILIES AND MEDICAL PROFESSIONALS. ITS GOAL IS TO RAISE AWARENESS ABOUT THIS RARE GENETIC CONDITION AND UNITE FAMILIES, RESEARCHERS, AND MEDICAL PROFESSIONALS THROUGH THE FACILITATION OF A PATIENT REGISTRY PROGRAM.