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Organizations Medical Research The Kennedy Willis Center on Down Syndrome Inc.

The Kennedy Willis Center on Down Syndrome Inc.

Fiscal year ending 2024. Filed on November 5, 2025.

3 Chenango Road
Edmeston, New York 13335

The Kennedy Willis Center on Down Syndrome Inc. (EIN: 61-1927678) has filed an IRS Form 990 since fiscal year 2020. In its fiscal year 2024 IRS Form 990 filing, The Kennedy Willis Center on Down Syndrome Inc., a 501(c)(3) charitable organization, reported compensation for 9 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$195,538

Expenses

$208,952

Employee compensation

$138,299
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Karen Knavel
Chief Executive Officer
$0
Margaret Savoie
Chair
$0
Michael Garrity
Director
$0
E Adel Herge
Director
$0
Elisabeth Fournier
Vice Chair
$0
Caprice Eckert
Chief Financial Officer
$0
Brittany Goodrich
Director
$0
Martha Winsor
Director
$0
Hut Beal
Director
$0

Benchmark Employee Compensation

Mission Statement

THE KENNEDY WILLIS CENTER ON DOWN SYNDROME, INC.'S OBJECTIVES ARE TO BE A NATIONAL RESOURCE PROVIDING BEST PRACTICE PROCEDURES, TRAINING, RESEARCH AND PROGRAM DEVELOPMENT TO FAMILIES, PROFESSIONALS AND TO THE DISABILITIES' COMMUNITY AT LARGE, WITH THE GOAL OF CREATING MEANINGFUL LIVES FOR CHILDREN AND ADULTS WITH DOWN SYNDROME AND RELATED INTELLECTUAL AND DEVELOPMENT DISABILITIES THROUGHOUT THE LIFE SPAN.

Revisions to this organization profile

November 5, 2025:
2024 The Kennedy Willis Center on Down Syndrome Inc. 990 filed
November 11, 2024:
2023 The Kennedy Willis Center on Down Syndrome Inc. 990 filed
November 9, 2023:
2022 The Kennedy Willis Center on Down Syndrome Inc. 990 filed

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