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Organizations The Marfan Foundation Inc.

The Marfan Foundation Inc.

Fiscal year ending 2025. Filed on October 28, 2025.

22 Manhasset Avenue
Port Washington, New York 11050

The Marfan Foundation Inc. (EIN: 52-1265361) has filed an IRS Form 990 since fiscal year 2017. In its fiscal year 2025 IRS Form 990 filing, The Marfan Foundation Inc., a 501(c)(3) charitable organization, reported compensation for 8 out of 30 total employees. Among the employees shown here, the average compensation is $227,758. The highest compensated employee at The Marfan Foundation Inc. is Michael L Weamer with fiscal year 2025 compensation of $502,741.

Revenue, expenses, and employee compensation

Revenue

$7,780,692

Expenses

$7,566,004

Employee compensation

$4,262,612
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Michael L Weamer
President and Chief Executive Officer
$502,741
$474,635 No related comp$28,106
Helaine Baruch
Chief Development Officer
$268,308
$250,145 No related comp$18,163
Josephine Grima
Chief Science Officer
$228,488
$210,325 No related comp$18,163
Eileen Novins
Chief Program Officer
$212,616
$194,453 No related comp$18,163
Inderjeet Kaur, Cpa
Chief Financial Officer
$186,184
$168,021 No related comp$18,163
Judith Gibaldi
Chief Operating Officer
$153,336
$125,230 No related comp$28,106
Kimberly K Huddleston
Vice President, Development
$138,338
$138,012 No related comp$326
Lauren E May
Research Director
$132,050
$131,724 No related comp$326

Benchmark Employee Compensation

Non-Employee Board Members

Alan Braverman, M.D.
Director
Andrew Toy
Director
Anthony Yasick, M.D.
Director
Bert Medina
Chair
Brandy Banks Hotchkiss
Director
Bryan Maher
Director
Caryn E Kauffman, Cpa
Treasurer
Cory A Eaves
Former Chair
David Warren
Director
Dawn Reiner
Director
Duke Cameron, M.D.
Director
Gary Kauffman
Director

Contractors

42ND Street Lessee LLC Dba Cipriani
Event Package for Venue and Catering
$125,000

Mission Statement

SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.

Revisions to this organization profile

October 28, 2025:
2025 The Marfan Foundation Inc. 990 filed
October 24, 2024:
2024 The Marfan Foundation Inc. 990 filed
October 26, 2023:
2023 The Marfan Foundation Inc. 990 filed

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