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Organizations Human Services The Myositis Association

The Myositis Association

Fiscal year ending 2020. Filed on November 9, 2021.

6950 Columbia Gateway Dr 370
Columbia, Maryland 21046

The Myositis Association (EIN: 54-1660976) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2020 IRS Form 990 filing, The Myositis Association, a 501(c)(3) charitable organization, reported compensation for 1 out of 3 total employees. Among the employees shown here, the average compensation is $175,979. The highest compensated employee at The Myositis Association is Mary McGowan with fiscal year 2020 compensation of $175,979.

Revenue, expenses, and employee compensation

Revenue

$1,179,750

Expenses

$1,183,055

Employee compensation

$372,326
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Mary McGowan
Executive Director
$175,979
$170,920 No related comp$5,059

Benchmark Employee Compensation

Non-Employee Board Members

Christopher Dotur
Director
$31,200
$31,200 No related compNo other comp
Gail Bayliss
Director
No compensation reported
Laurie Boyer
Director
No compensation reported
Rex Bickers
Director
No compensation reported
Jeff Autrey
Director
No compensation reported
Marianne Moyer
Director
No compensation reported
Lisa Motley
Treasurer
No compensation reported
David Mochel
Vice President
No compensation reported
Wayne Mortensen
Treasurer
No compensation reported
Martha Arnold
Secretary
No compensation reported
Chai Hoang
Director
No compensation reported
Steven Ytterberg
Director
No compensation reported

Mission Statement

The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an

Revisions to this organization profile

November 8, 2025:
2024 The Myositis Association 990 filed
November 14, 2024:
2023 The Myositis Association 990 filed
November 10, 2023:
2022 The Myositis Association 990 filed

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