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Organizations Diseases, Disorders & Medical The Neuromuscular Disease Foundation

The Neuromuscular Disease Foundation

Fiscal year ending 2024. Filed on November 17, 2025.

269 South Beverly Drive 1206
Beverly Hills, California 90212

The Neuromuscular Disease Foundation (EIN: 06-1789643) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, The Neuromuscular Disease Foundation, a 501(c)(3) charitable organization, reported compensation for 4 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$65,419

Expenses

$352,447

Employee compensation

$0
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Isabella Tyszler
Director
$0
David Dahl
Director
$0
David Haverim
Director
$0
Suma Rao-Gupta
Director
$0

Benchmark Employee Compensation

Non-Employee Board Members

Amy Curran
Director
Coleman Kennedy
Chief Executive Officer
David Golden
Chief Financial Officer
Navid Rachman
Director
Tahseen Mozaffar
Director
Tara Voogel
Secretary

Mission Statement

THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.

Revisions to this organization profile

November 17, 2025:
2024 The Neuromuscular Disease Foundation 990 filed
November 14, 2024:
2023 The Neuromuscular Disease Foundation 990 filed
October 24, 2023:
2022 The Neuromuscular Disease Foundation 990 filed

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