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Organizations Diseases, Disorders & Medical The Neuromuscular Disease Foundation

The Neuromuscular Disease Foundation

Fiscal year ending 2021. Filed on September 15, 2022.

269 South Beverly Drive 1206
Beverly Hills, California 90212

The Neuromuscular Disease Foundation (EIN: 06-1789643) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2021 IRS Form 990 filing, The Neuromuscular Disease Foundation, a 501(c)(3) charitable organization, reported compensation for 3 out of 5 total employees. Among the employees shown here, the average compensation is $102,952. The highest compensated employee at The Neuromuscular Disease Foundation is Lale Jackson Welsh with fiscal year 2021 compensation of $207,667.

Revenue, expenses, and employee compensation

Revenue

$439,105

Expenses

$1,152,206

Employee compensation

$463,724
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Lale Jackson Welsh
Chief Executive Officer
$207,667
$207,667 No related compNo other comp
Nancy Lurie
Chief Operating Officer
$87,500
$87,500 No related compNo other comp
Geoffrey Gee
Executive Director
$13,689
$13,689 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Alex Monsef
Director
Carolyn Becher
Secretary
David Dahl
Treasurer
David Haverim
Director
Jason Taban
Director
Maria Montgomery
Director
Ralph Loren
Co-Chair
Tahseen Mozaffar
Director
Tricia Mullins
Co-Chair

Mission Statement

THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.

Revisions to this organization profile

November 17, 2025:
2024 The Neuromuscular Disease Foundation 990 filed
November 14, 2024:
2023 The Neuromuscular Disease Foundation 990 filed
October 24, 2023:
2022 The Neuromuscular Disease Foundation 990 filed

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