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Organizations Human Services The Parent Project for Muscular Dystrophy Research Inc.

The Parent Project for Muscular Dystrophy Research Inc.

Fiscal year ending 2024. Filed on August 21, 2025.

1012 14th Street NW 500
17th Pl
Washington, District of Columbia 20005

The Parent Project for Muscular Dystrophy Research Inc. (EIN: 31-1405490) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, The Parent Project for Muscular Dystrophy Research Inc., a 501(c)(3) charitable organization, reported compensation for 5 out of 27 total employees. Among the employees shown here, the average compensation is $259,039. The highest compensated employee at The Parent Project for Muscular Dystrophy Research Inc. is Patricia A Furlong with fiscal year 2024 compensation of $383,769.

Revenue, expenses, and employee compensation

Revenue

$14,311,761

Expenses

$12,881,402

Employee compensation

$4,089,108
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Patricia A Furlong
President and Chief Executive Officer
$383,769
$370,075 No related comp$13,694
Kaylan Moitoso
Chief Business Officer
$302,675
$293,650 No related comp$9,025
Rachel Schrader
Vice President Clinical CARE and Education
$208,357
$174,800 No related comp$33,557
Jodi Wolff
Chief Program Officer
$206,964
$194,569 No related comp$12,395
Ann Martin
Vice President Community Research and Genetic SERV
$193,429
$176,600 No related comp$16,829

Benchmark Employee Compensation

Non-Employee Board Members

Alpa Khushalani
Vice Chair
Colin Rensch
Director
David N Hofstein
Executive Committee Member
Dawn Rezkalla
Treasurer
Deanne Friar
Secretary
Gretchen Egner
Board Chair
Jeffrey Bigelow
Director
John Killian
Director
Lance Hester
Director
Maru Chapur
Director
Michelle Furlong
Director
Richard Klein
Director

Contractors

Omni Hotels
Meeting and Conference
$978,891
Sanibel Harbour Marriott Resort and Spa
Meeting and Conference
$413,775
Faegre Drinker Biddle & Reath LLP
Legal and Regulatory Consulting
$372,956
Uhs Premium Billing
Health Insurance
$311,634
All Colors
Materials Supplier Shipping and Storag
$277,424

Mission Statement

THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.

Revisions to this organization profile

August 21, 2025:
2024 The Parent Project for Muscular Dystrophy Research Inc. 990 filed
July 24, 2024:
2023 The Parent Project for Muscular Dystrophy Research Inc. 990 filed
August 7, 2023:
2022 The Parent Project for Muscular Dystrophy Research Inc. 990 filed

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