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Organizations Health Care The Yaya Foundation for 4H Leukodystophy

The Yaya Foundation for 4H Leukodystophy

Fiscal year ending 2024. Filed on November 4, 2025.

PO Box 80685
Minneapolis, Minnesota 55408

The Yaya Foundation for 4H Leukodystophy (EIN: 82-3888108) has filed an IRS Form 990 since fiscal year 2018. In its fiscal year 2024 IRS Form 990 filing, The Yaya Foundation for 4H Leukodystophy, a 501(c)(3) charitable organization, reported compensation for 1 out of 2 total employees. Among the employees shown here, the average compensation is $150,000. The highest compensated employee at The Yaya Foundation for 4H Leukodystophy is Benjamin Smith with fiscal year 2024 compensation of $150,000.

Revenue, expenses, and employee compensation

Revenue

$284,117

Expenses

$410,790

Employee compensation

$161,977
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Benjamin Smith
Executive Director
$150,000
$150,000 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Chris Cleary
Director
Debbie Triptow
Director
Dr Daniel Grossman
Chair
Dr Margo Hutchinson
Director
Gabriel Bassin
Director
Jim st John
Director
Jude Tallman
Director
June Garber Cheng
Secretary
Kurt Triptow
Director
Marcie Flores
Director
Ron Garber
Chair
Solomon Lieberman
Director

Mission Statement

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

Revisions to this organization profile

November 4, 2025:
2024 The Yaya Foundation for 4H Leukodystophy 990 filed
October 1, 2024:
2023 The Yaya Foundation for 4H Leukodystophy 990 filed
May 22, 2023:
2022 The Yaya Foundation for 4H Leukodystophy 990 filed

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