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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Undiagnosed Diseases Network Foundation

Undiagnosed Diseases Network Foundation

Fiscal year ending 2021. Filed on September 9, 2022.

1012 14th Street NW Suite 500
Suite 500
Washington, District of Columbia 20005

Undiagnosed Diseases Network Foundation (EIN: 87-3474254) has filed an IRS Form 990 between fiscal years 2021 and 2024. In its fiscal year 2021 IRS Form 990 filing, Undiagnosed Diseases Network Foundation, a 501(c)(3) charitable organization, reported compensation for 4 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$0

Expenses

$0

Employee compensation

$0
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kimberly Leblanc, Ms, Cgc
Secretary
$0
Helene Cederroth
Vice President
$0
Meghan Halley, Ph.D.
President
$0
Troy Evans
Treasurer
$0

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.

Revisions to this organization profile

October 21, 2025:
2024 Undiagnosed Diseases Network Foundation 990 filed
November 15, 2024:
2023 Undiagnosed Diseases Network Foundation 990 filed
September 9, 2022:
2021 Undiagnosed Diseases Network Foundation 990 filed

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