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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Undiagnosed Diseases Network Foundation

Undiagnosed Diseases Network Foundation

Fiscal year ending 2023. Filed on November 15, 2024.

1012 14th Street NW Suite 500
Washington, District of Columbia 20005

Undiagnosed Diseases Network Foundation (EIN: 87-3474254) has filed an IRS Form 990 between fiscal years 2021 and 2024. In its fiscal year 2023 IRS Form 990 filing, Undiagnosed Diseases Network Foundation, a 501(c)(3) charitable organization, reported compensation for 2 employees. Among the employees shown here, the average compensation is $95,146. The highest compensated employee at Undiagnosed Diseases Network Foundation is Amy Gray with fiscal year 2023 compensation of $95,146.

Revenue, expenses, and employee compensation

Revenue

$2,579,825

Expenses

$218,337

Employee compensation

$95,146
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Amy Gray
Chief Executive Officer
$95,146
$95,146 No related compNo other comp
Helene Cederroth
Vice Chair
$0

Benchmark Employee Compensation

Non-Employee Board Members

Anne Pariser
Board Member
Effie Parks
Board Member
F Sessions Cole
Secretary
Gerald Sweeney
Board Member
Liliana Fernandez
Board Member
Meghan Halley
Board Chair
Parvathy Krishnan
Board Member
Sika Dunyoh
Board Member
Stephan Zuchner
Board Member
Tania Simoncelli
Board Member
Tom Kelley
Board Member
Troy Evans
Treasurer

Mission Statement

THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.

Revisions to this organization profile

October 21, 2025:
2024 Undiagnosed Diseases Network Foundation 990 filed
November 15, 2024:
2023 Undiagnosed Diseases Network Foundation 990 filed
September 9, 2022:
2021 Undiagnosed Diseases Network Foundation 990 filed

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