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Organizations Diseases, Disorders & Medical Undiagnosed Diseases Network Foundation

Undiagnosed Diseases Network Foundation

Fiscal year ending 2024. Filed on October 21, 2025.

1012 14th Street NW Suite 500
Washington, District of Columbia 20005

Undiagnosed Diseases Network Foundation (EIN: 87-3474254) has filed an IRS Form 990 between fiscal years 2021 and 2024. In its fiscal year 2024 IRS Form 990 filing, Undiagnosed Diseases Network Foundation, a 501(c)(3) charitable organization, reported compensation for 1 employee. Among the employees shown here, the average compensation is $352,756. The highest compensated employee at Undiagnosed Diseases Network Foundation is Amy Gray with fiscal year 2024 compensation of $352,756.

Revenue, expenses, and employee compensation

Revenue

$328,998

Expenses

$1,427,906

Employee compensation

$354,309
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Amy Gray
Chief Executive Officer
$352,756
$352,756 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Stephanie Tomlinson
Board Member
$1,554
$1,554 No related compNo other comp
Sika Dunyoh
Board Member
No compensation reported
Tania Simoncelli
Board Member
No compensation reported
Kelly Cerventes
Board Member
No compensation reported
Gerald Sweeney
Board Member
No compensation reported
Jessica Swanson
Board Member
No compensation reported
Troy Evans
Treasurer
No compensation reported
Stephan Zuchner
Board Member
No compensation reported
Parvathy Krishnan
Board Member
No compensation reported
Tom Kelley
Board Member
No compensation reported
Meghan Halley
Board Chair
No compensation reported
Liliana Fernandez
Board Member
No compensation reported

Contractors

Amy Gray
Strategic Leadership
$352,756
Michelle Herndon
Patient Navigation
$163,053
Christian Bailey Siscoe
Patient Navigation
$108,161
Finn Partners Inc.
Communications Support
$100,755

Mission Statement

THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.

Revisions to this organization profile

October 21, 2025:
2024 Undiagnosed Diseases Network Foundation 990 filed
November 15, 2024:
2023 Undiagnosed Diseases Network Foundation 990 filed
September 9, 2022:
2021 Undiagnosed Diseases Network Foundation 990 filed

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