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Organizations United Leukodystrophy Foundation Inc.

United Leukodystrophy Foundation Inc.

Fiscal year ending 2022. Filed on May 22, 2023.

224 N Second St
Dekalb, Illinois 60115

United Leukodystrophy Foundation Inc. (EIN: 35-1557361) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2022 IRS Form 990 filing, United Leukodystrophy Foundation Inc., a 501(c)(3) charitable organization, reported compensation for 1 out of 3 total employees. Among the employees shown here, the average compensation is $61,092. The highest compensated employee at United Leukodystrophy Foundation Inc. is Christopher Rice with fiscal year 2022 compensation of $61,092.

Revenue, expenses, and employee compensation

Revenue

$498,897

Expenses

$557,781

Employee compensation

$188,757
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Christopher Rice
Executive Director
$61,092
$61,092 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Donna Skwirut
Treasurer
Dr Joseph Hacia
Director
Dr Stephanie Keller
Director
John Kaprich
Director
John Wolf
Director
Joyce Changle
Director
Kristie Demarco
Director
Marcie Flores
Director
Margaret McIntyre
Director
Marilyn Schmiedel
Director
Robert Rauner
President
Ron Chapleau
Vice President

Mission Statement

The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.

Revisions to this organization profile

May 7, 2025:
2024 United Leukodystrophy Foundation Inc. 990 filed
May 7, 2024:
2023 United Leukodystrophy Foundation Inc. 990 filed
May 22, 2023:
2022 United Leukodystrophy Foundation Inc. 990 filed

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