Compensation 990
OrganizationsEmployeesBoard MembersGrantsContractorsTop RankingsPricing

Stay updated on 990 organization compensation

© Civic Register LLC

Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

About•Report a discrepancy•Your privacy choices
Organizations United Leukodystrophy Foundation Inc.

United Leukodystrophy Foundation Inc.

Fiscal year ending 2024. Filed on May 7, 2025.

224 N Second St
Dekalb, Illinois 60115

United Leukodystrophy Foundation Inc. (EIN: 35-1557361) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, United Leukodystrophy Foundation Inc., a 501(c)(3) charitable organization, reported compensation for 1 out of 3 total employees. Among the employees shown here, the average compensation is $94,381. The highest compensated employee at United Leukodystrophy Foundation Inc. is Diane Fennimore with fiscal year 2024 compensation of $94,381.

Revenue, expenses, and employee compensation

Revenue

$596,320

Expenses

$553,048

Employee compensation

$210,099
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Diane Fennimore
Executive Director
$94,381
$94,381 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Amber Freed
Director
Donna Skwirut
Treasurer
Dr Joseph Hacia
Director
Dr Stephanie Keller
Vice President
Gregory Huffer
Director
John Kaprich
Director
Marcie Flores
Director
Margaret McIntyre
Director
Marilyn Schmiedel
Director
Michele Herndon
Director
Mousumi Bose
Director
Ron Chapleau
President

Mission Statement

The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.

Revisions to this organization profile

May 7, 2025:
2024 United Leukodystrophy Foundation Inc. 990 filed
May 7, 2024:
2023 United Leukodystrophy Foundation Inc. 990 filed
May 22, 2023:
2022 United Leukodystrophy Foundation Inc. 990 filed

Get an email when new compensation information is released for United Leukodystrophy Foundation Inc.

Be the first to know when new IRS Form 990 data is published for this organization.

Related Jobs

View more jobs
Powered by Talroo
Report a discrepancy →