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Organizations Diseases, Disorders & Medical United Porphyrias Association Inc.

United Porphyrias Association Inc.

Fiscal year ending 2024. Filed on May 15, 2025.

4800 Hampden Lane 200
Bethesda, Maryland 20814

United Porphyrias Association Inc. (EIN: 87-4143089) has filed an IRS Form 990 since fiscal year 2023. In its fiscal year 2024 IRS Form 990 filing, United Porphyrias Association Inc., a 501(c)(3) charitable organization, reported compensation for 1 out of 4 total employees. Among the employees shown here, the average compensation is $74,063. The highest compensated employee at United Porphyrias Association Inc. is Kristen Wheeden with fiscal year 2024 compensation of $74,063.

Revenue, expenses, and employee compensation

Revenue

$458,112

Expenses

$254,907

Employee compensation

$77,170
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kristen Wheeden
President
$74,063
$74,063 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Andrew L Turell
Chair
Ariel Lager
Director
Hetanshi Naik, Ph.D., Ms, Cgc
Secretary
Hon Joseph Crowley
Director
Robert J Desnick, Ph.D., M.D.
Director
Shawn Willis
Treasurer

Mission Statement

The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias.

Revisions to this organization profile

May 15, 2025:
2024 United Porphyrias Association Inc. 990 filed
May 15, 2024:
2023 United Porphyrias Association Inc. 990 filed

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