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Organizations Virginia Down Syndrome Association

Virginia Down Syndrome Association

Fiscal year ending 2024. Filed on April 21, 2025.

1504 Santa Rosa Road 124
Richmond, Virginia 23229

Virginia Down Syndrome Association (EIN: 54-1252305) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Virginia Down Syndrome Association, a 501(c)(3) charitable organization, reported compensation for 2 out of 9 total employees. Among the employees shown here, the average compensation is $0. Virginia Down Syndrome Association changed its name from Down's Syndrome Association of Greater Richmond Inc. in 2022.

Revenue, expenses, and employee compensation

Revenue

$625,016

Expenses

$666,023

Employee compensation

$399,793
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Bobbi Jones
Finance Director
$0
Jennifer Case
Executive Director
$0

Benchmark Employee Compensation

Non-Employee Board Members

Amanda Wheeler
Director
Amy Bravo
Secretary
Carol Coffin
Director
Carole Ivey
Vice President
Christian Emery
Director
Clifford Twiggs
Director
Emmanuel Gayot
Director
Frances Rudd
Director
Janai Santiago
Director
Katie Haskins
Director
Kimberly Boose
Director
Mark Boone
Former President

Mission Statement

VIRGINIA DOWN SYNDROME ASSOCIATION IS A 501(C)3 NONPROFIT ORGANIZATION THAT BENEFITS THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME (DS) AND THEIR FAMILIES THROUGH INDIVIDUAL AND FAMILY SUPPORT, EDUCATION, COMMUNITY AWARENESS, AND ADVOCACY. WE ADVOCATE FOR AWARENESS AND UNDERSTANDING BY EDUCATING OUR COMMUNITY ABOUT DS AND OFFERING EDUCATION PROGRAMS TO HELP OUR MEMBERS NAVIGATE THE LIFESPAN FROM EARLY CHILDHOOD THROUGH THE SCHOOL YEARS, TRANSITION, AND INTO ADULTHOOD. WE PROVIDE INDIVIDUAL SUPPORT TO FAMILIES TO ACCESS RESOURCES, MEDICAL CARE, AND SOCIAL SUPPORT FOR INDIVIDUALS WITH DOWN SYNDROME AND THEIR ENTIRE FAMILY. WE BELIEVE INDIVIDUALS WITH DOWN SYNDROME ARE VALUABLE MEMBERS OF OUR COMMUNITY AND IN WHOM ALL THINGS ARE POSSIBLE. WITH FULL OPPORTUNITIES AND COMMUNITY, INDIVIDUALS WITH DS WILL ACHIEVE GREAT THINGS. WE BOAST A MEMBERSHIP OF HUNDREDS OF FAMILIES, A COMMUNITY WITHIN OUR COMMUNITY THAT CELEBRATES AND EMBRACES RAISING CHILDREN WITH DOWN SYNDROME. WE LISTEN, WE LEARN

Revisions to this organization profile

November 17, 2025:
2025 Virginia Down Syndrome Association 990 filed
April 21, 2025:
2024 Virginia Down Syndrome Association 990 filed
November 6, 2023:
2023 Virginia Down Syndrome Association 990 filed

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