Compensation 990
OrganizationsEmployeesBoard MembersGrantsContractorsTop RankingsPricing

Stay updated on 990 organization compensation

© Civic Register LLC

Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

About•Report a discrepancy•Your privacy choices
Organizations Diseases, Disorders & Medical Williams Syndrome Association Inc.

Williams Syndrome Association Inc.

Fiscal year ending 2024. Filed on November 17, 2025.

243 Broadway 9188
Newark, New Jersey 07104

Williams Syndrome Association Inc. (EIN: 22-3305007) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2024 IRS Form 990 filing, Williams Syndrome Association Inc., a 501(c)(3) charitable organization, reported compensation for 2 out of 10 total employees. Among the employees shown here, the average compensation is $143,023. The highest compensated employee at Williams Syndrome Association Inc. is Sarah Schaefer with fiscal year 2024 compensation of $161,534.

Revenue, expenses, and employee compensation

Revenue

$2,016,743

Expenses

$2,143,132

Employee compensation

$876,167
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Sarah Schaefer
Executive Director AS of Jul'24
$161,534
$145,000 No related comp$16,534
Mary van Haneghan
Executive Director Through Jul'24
$124,511
$112,811 No related comp$11,700

Benchmark Employee Compensation

Non-Employee Board Members

Aaron Lombard
Trustee
Amy Nussbaum
Trustee
Ben Samelson-Jones
Trustee
Bill Palmer
President
Brendan Lemieux
Trustee
Clancey Hopper
Trustee
Danielle Shockey
Trustee
Ellen Hoch
Trustee
Gianna Morello
Trustee
Janetricks Chebukati Okeyo
Secretary
Kelly Wei
Trustee
Lisette Engel
Trustee

Contractors

Hyatt Regency
Convention Space and Catering
$271,727
Technology Express Inc.
Convention Audio Visual
$116,220

Mission Statement

TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.

Revisions to this organization profile

November 17, 2025:
2024 Williams Syndrome Association Inc. 990 filed
November 15, 2024:
2023 Williams Syndrome Association Inc. 990 filed
November 15, 2023:
2022 Williams Syndrome Association Inc. 990 filed

Get an email when new compensation information is released for Williams Syndrome Association Inc.

Be the first to know when new IRS Form 990 data is published for this organization.

Related Jobs

View more jobs
Powered by Talroo
Report a discrepancy →