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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Williams Syndrome Association Inc.

Williams Syndrome Association Inc.

Fiscal year ending 2023. Filed on November 15, 2024.

243 Broadway 9188
Newark, New Jersey 07104

Williams Syndrome Association Inc. (EIN: 22-3305007) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2023 IRS Form 990 filing, Williams Syndrome Association Inc., a 501(c)(3) charitable organization, reported compensation for 3 out of 13 total employees. Among the employees shown here, the average compensation is $141,870. The highest compensated employee at Williams Syndrome Association Inc. is Mary van Haneghan with fiscal year 2023 compensation of $195,968.

Revenue, expenses, and employee compensation

Revenue

$1,721,772

Expenses

$1,940,371

Employee compensation

$1,043,900
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Mary van Haneghan
Executive Director
$195,968
$171,903 No related comp$24,065
Sarah Giddings
Vice President, Programs
$121,055
$107,893 No related comp$13,162
Joe Mancini
Vice President, Advancement
$108,588
$108,458 No related comp$130

Benchmark Employee Compensation

Non-Employee Board Members

Aaron Lombard
Trustee
Aine Smalley
Vice President
Amy Nussbaum
Trustee
Bill Palmer
Trustee
Brendan Lemieux
Trustee
Clancey Hopper
Trustee
Cyndra Cole
President
Ellen Hoch
Trustee
Gianna Morello
Trustee
Janetricks Chebukati Okeyo
Trustee
Kelly Wei
Trustee
Matt Bartow
Secretary

Mission Statement

TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.

Revisions to this organization profile

November 17, 2025:
2024 Williams Syndrome Association Inc. 990 filed
November 15, 2024:
2023 Williams Syndrome Association Inc. 990 filed
November 15, 2023:
2022 Williams Syndrome Association Inc. 990 filed

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