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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Employees Families of Spinal Muscular Atrophy Dba Cure Sma Colleen McCarthy O'Toole

Colleen McCarthy O'Toole

Highest compensated employee

Senior Vice President, Communi at Families of Spinal Muscular Atrophy Dba Cure Sma

Fiscal year ended June 30, 2025. Published on January 25, 2026.

$202,496
2025

Total compensation

Colleen McCarthy O'Toole has been listed as an employee of Families of Spinal Muscular Atrophy Dba Cure Sma in Form 990 filings since fiscal year 2018. Total compensation for Colleen McCarthy O'Toole has increased by 50.8% from 2018 to 2025.

Annual compensation details

$202,496
-0.1%
Senior Vice President, Communi
2025
$176k
60 hrs/wk
$28k
--
$202,736
+18.4%
Senior Vice President, Communi
2024
$177k
60 hrs/wk
$27k
--
$171,265
-0.9%
Senior Vice President, Community Support
2023
$147k
60 hrs/wk
$25k
--
$172,852
-1.6%
Vice President Family Support
2022
$150k
60 hrs/wk
$24k
--
$175,575
+13.9%
Vice President Family Support
2021
$154k
60 hrs/wk
$23k
--
$154,086
+6.6%
Vice President Events and F
2020
$133k
60 hrs/wk
$22k
--
$144,540
+7.6%
Vice President Events and Family Support
2019
$123k
60 hrs/wk
$23k
--
$134,323
Vice President Events and Family Support
2018
$114k
60 hrs/wk
$21k
--

Total compensation by year

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Revisions to this profile

January 25, 2026:
2025 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published
January 25, 2026:
2024 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published
January 25, 2026:
2023 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published

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2025

Other employees at Families of Spinal Muscular Atrophy Dba Cure Sma

Kenneth Hobby
President
$348,806
$329,195 No related comp$19,611
Jamie Gibson
Chief Development Officer
$294,579
$266,038 No related comp$28,541
Marline Pagan
Chief Operating Officer
$239,457
$208,905 No related comp$30,552
Mary Schroth
Chief Medical Officer (Through 3/31/25)
$228,544
$218,342 No related comp$10,202
Maynard Friesz
Vice President, Policy
$163,143
$149,595 No related comp$13,548
Mary Curry
Vice President Clinical Research and CARE
$158,715
$138,474 No related comp$20,241
Jackie Glascock
Vice President, Research
$153,657
$146,346 No related comp$7,311
Jesse Aynes
Vice President, Development
$145,118
$135,299 No related comp$9,819

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