Compensation 990
OrganizationsEmployeesBoard MembersGrantsContractorsTop RankingsPricing

Stay updated on 990 organization compensation

© 2026 Civic Register LLC

Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

About•Report a discrepancy•Your privacy choices
Employees Families of Spinal Muscular Atrophy Dba Cure Sma Kenneth Hobby

Kenneth Hobby

Officer

President at Families of Spinal Muscular Atrophy Dba Cure Sma

Fiscal year ended June 30, 2025. Published on January 25, 2026.

$348,806
2025

Total compensation

Kenneth Hobby has been listed as an employee of Families of Spinal Muscular Atrophy Dba Cure Sma in Form 990 filings since fiscal year 2017. Total compensation for Kenneth Hobby has increased by 77.3% from 2017 to 2025.

Annual compensation details

$348,806
-2.6%
President
2025
$330k org
70 hrs/wk
$20k other
--
$358,071
+3.7%
President
2024
$339k org
70 hrs/wk
$20k other
--

Total compensation by year

Compare the compensation of Kenneth Hobby to:

2025

Other employees at Families of Spinal Muscular Atrophy Dba Cure Sma

Jamie Gibson
Chief Development Officer
$294,579
$266,038 from orgNo related comp$28,541 other
Marline Pagan
Chief Operating Officer
$239,457
$208,905 from orgNo related comp$30,552 other
Mary Schroth
Chief Medical Officer (Through 3/31/25)
$228,544
$218,342 from orgNo related comp$10,202 other
Colleen McCarthy O'Toole
Senior Vice President, Communi
$202,496
$175,435 from orgNo related comp$27,061 other
Maynard Friesz
Vice President, Policy
$163,143
$149,595 from orgNo related comp$13,548 other
Mary Curry
Vice President Clinical Research and CARE
$158,715
$138,474 from orgNo related comp$20,241 other
Jackie Glascock
Vice President, Research
$153,657
$146,346 from orgNo related comp$7,311 other
Jesse Aynes
Vice President, Development
$145,118
$135,299 from orgNo related comp$9,819 other
Loading rankings…
Loading related profiles…

Revisions to this profile

January 25, 2026:
2025 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published
January 25, 2026:
2024 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published
January 25, 2026:
2023 Families of Spinal Muscular Atrophy Dba Cure Sma 990 published

Get an email update when compensation for Kenneth Hobby is updated

Related Jobs

View more jobs
Powered by Talroo
Report a discrepancy →
$345,151
+4.6%
President
2023
$327k org
70 hrs/wk
$19k other
--
$330,026
-4.2%
President
2022
$313k org
70 hrs/wk
$18k other
--
$344,658
+22.3%
President
2021
$328k org
70 hrs/wk
$17k other
--
$281,723
+10.4%
President
2020
$265k org
70 hrs/wk
$18k other
--
$255,212
+17.6%
President
2019
$232k org
70 hrs/wk
$24k other
--
$217,009
+10.3%
President
2018
$185k org
70 hrs/wk
$33k other
--
$196,763
President
2017
$183k org
70 hrs/wk
$15k other
--