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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Employees National Organization for Rare Disorders Inc. Edward Neilan

Edward Neilan

Highest compensated employee

Chief Medical and Scientific Officer at National Organization for Rare Disorders Inc.

Fiscal year ended December 31, 2024. Published on January 25, 2026.

$332,277
2024

Total compensation

Edward Neilan has been listed as an employee of National Organization for Rare Disorders Inc. in Form 990 filings since fiscal year 2021. Total compensation for Edward Neilan has increased by 57.9% from 2021 to 2024.

Annual compensation details

$332,277
+0.8%
Chief Medical and Scientific Officer
2024
$271k
35 hrs/wk
$62k
--
$329,637
-6.4%
Chief Medical and Scientific Officer
2023
$271k
35 hrs/wk
$59k
--
$352,033
+67.3%
Chief Medical and Scientific Officer
2022
$299k
35 hrs/wk
$54k
--
$210,393
Chief Medical and Scientific Officer
2021
$181k
35 hrs/wk
$30k
--

Total compensation by year

Compare the compensation of Edward Neilan to:

Revisions to this profile

January 25, 2026:
2024 National Organization for Rare Disorders Inc. 990 published
January 25, 2026:
2023 National Organization for Rare Disorders Inc. 990 published
January 25, 2026:
2022 National Organization for Rare Disorders Inc. 990 published

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2024

Other employees at National Organization for Rare Disorders Inc.

Pamela Gavin
Executive Vice President (Until 5/24)/Ceo (AS of 5/24)
$475,492
$441,759 No related comp$33,733
Peter Saltonstall
CEO (Until 5/24)/Ceo Emeritus (AS of 5/24)
$398,956
$374,441 No related comp$24,515
Prashant Goel
Vice President, Information Technology
$298,064
$283,442 No related comp$14,622
Patrick Collins
Vice President Community and Corporate Affairs
$265,586
$207,141 No related comp$58,445
Alexandra Moore
Vice President, Development
$258,059
$245,775 No related comp$12,284
Neeta Kotecha
Vice President and Chief Financial Officer
$221,966
$179,637 No related comp$42,329
Jill Pollander
Vice President, Patient Services
$208,148
$182,382 No related comp$25,766
Kelleen Esperias
Chief Strategy and Operations Officer
$77,435
$71,108 No related comp$6,327