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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Employees National Organization for Rare Disorders Inc. Pamela Gavin

Pamela Gavin

Officer

Executive Vice President (Until 5/24)/Ceo (AS of 5/24) at National Organization for Rare Disorders Inc.

Fiscal year ended December 31, 2024. Published on January 25, 2026.

$475,492
2024

Total compensation

Pamela Gavin has been listed as an employee of National Organization for Rare Disorders Inc. in Form 990 filings since at least fiscal year 2016. Total compensation for Pamela Gavin has increased by 59.7% from 2016 to 2024.

Annual compensation details

$475,492
+12.5%
Executive Vice President (Until 5/24)/Ceo (AS of 5/24)
2024
$442k org
35 hrs/wk
$34k other
--
$422,733
+3.4%
Executive Vice President
2023
$391k org
35 hrs/wk
$32k other
--

Total compensation by year

Compare the compensation of Pamela Gavin to:

2024

Other employees at National Organization for Rare Disorders Inc.

Peter Saltonstall
CEO (Until 5/24)/Ceo Emeritus (AS of 5/24)
$398,956
$374,441 from orgNo related comp$24,515 other
Edward Neilan
Chief Medical and Scientific Officer
$332,277
$270,662 from orgNo related comp$61,615 other
Prashant Goel
Vice President, Information Technology
$298,064
$283,442 from orgNo related comp$14,622 other
Patrick Collins
Vice President Community and Corporate Affairs
$265,586
$207,141 from orgNo related comp$58,445 other
Alexandra Moore
Vice President, Development
$258,059
$245,775 from orgNo related comp$12,284 other
Neeta Kotecha
Vice President and Chief Financial Officer
$221,966
$179,637 from orgNo related comp$42,329 other
Jill Pollander
Vice President, Patient Services
$208,148
$182,382 from orgNo related comp$25,766 other
Kelleen Esperias
Chief Strategy and Operations Officer
$77,435
$71,108 from orgNo related comp$6,327 other
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Revisions to this profile

January 25, 2026:
2024 National Organization for Rare Disorders Inc. 990 published
January 25, 2026:
2023 National Organization for Rare Disorders Inc. 990 published
January 25, 2026:
2022 National Organization for Rare Disorders Inc. 990 published

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