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Organizations Diseases, Disorders & Medical Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Fiscal year ending 2022. Filed on November 14, 2023.

4550 Montgomery Avenue 1100n
Ust 015801 600 Grant St
Bethesda, Maryland 20814

Cystic Fibrosis Foundation (EIN: 13-1930701) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2022 IRS Form 990 filing, Cystic Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 16 out of 890 total employees. Among the employees shown here, the average compensation is $762,244. The highest compensated employee at Cystic Fibrosis Foundation is Jack Mahler, M.D. with fiscal year 2022 compensation of $2,694,782.

Revenue, expenses, and employee compensation

Revenue

$248,630,352

Expenses

$396,664,114

Employee compensation

$116,829,042
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Jack Mahler, M.D.
Chief Investment Officer
$2,694,782
$2,463,847 No related comp$230,935
Michael P Boyle, M.D.
President and Chief Executive Officer
$1,349,782
$950,256 No related comp$399,526
Earl Lee
Managing Director, Investments
$1,257,375
$1,023,013 No related comp$234,362
Eric Koehrsen
Managing Director, Investments
$1,169,271
$921,034 No related comp$248,237
Bruce Marshall, M.D.
Executive Vice President and Chief Medical Officer
$796,918
$692,205 No related comp$104,713
John P Clancy, M.D.
Senior Vice President, Clinical Research
$705,948
$551,336 No related comp$154,612
Mary Dwight
Chief Policy and Advocacy Officer
$672,921
$543,012 No related comp$129,909
Marybeth McMahon
Chief of Staff
$645,343
$552,564 No related comp$92,779
Anthony Durmowicz, M.D.
Vice President, Clinical Development
$638,695
$574,023 No related comp$64,672
Irena Barisic
Executive Vice President, CFAO, ASST SEC and ASST TRSR
$629,321
$557,940 No related comp$71,381
William Skach, M.D.
Executive Vice President and Chief Scientific Officer
$517,253
$455,835 No related comp$61,418
Preston Campbell, M.D.
Former CEO and Strategic Advisor
$456,111
$393,943 No related comp$62,168

Benchmark Employee Compensation

Non-Employee Board Members

Carole B Griego, M.D.
Trustee
Catherine C McLoud
Trustee
Chad T Moore
Trustee
David A Mount
Treasurer
Dominic J Caruso
Trustee
Eric R Olson, Ph.D.
Vice Chair
Eric Schneider, M.D.
Trustee
Jessica H Boyd, M.D.
Trustee
John S Weinberg
Executive Vice Chair
Kc Bryan White
Chair
Louis A Defalco
Vice Chair
Paul A Motenko
Trustee

Contractors

Vertex Pharmaceuticals Inc.
Contracted Research
$10,000,000
Eloxx Pharmaceuticals
Contracted Research
$8,811,900
Pioneering Medicine (Cf) LLC
Contracted Research
$8,000,000
Synspira Therapeutics Inc.
Contracted Research
$5,450,000
Armata Pharmaceuticals Inc.
Contracted Research
$2,500,000

Mission Statement

TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.

Revisions to this organization profile

November 14, 2025:
2024 Cystic Fibrosis Foundation 990 filed
November 12, 2024:
2023 Cystic Fibrosis Foundation 990 filed
November 14, 2023:
2022 Cystic Fibrosis Foundation 990 filed

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The Christopher Ricardo Cystic Fibrosis Foundation Inc
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Cystic Fibrosis Foundation Therapeutics Inc.
Bethesda, Maryland