Compensation 990
OrganizationsEmployeesBoard MembersGrantsContractorsTop RankingsPricing

Stay updated on 990 organization compensation

© Civic Register LLC

Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

About•Report a discrepancy•Your privacy choices
Organizations Diseases, Disorders & Medical Everylife Foundation for Rare Diseases

Everylife Foundation for Rare Diseases

Fiscal year ending 2022. Filed on July 11, 2023.

1012 14th Street NW 500
Washington, District of Columbia 20005

Everylife Foundation for Rare Diseases (EIN: 26-4614274) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2022 IRS Form 990 filing, Everylife Foundation for Rare Diseases, a 501(c)(3) charitable organization, reported compensation for 6 out of 19 total employees. Among the employees shown here, the average compensation is $177,893. The highest compensated employee at Everylife Foundation for Rare Diseases is Julia Jenkins with fiscal year 2022 compensation of $262,129.

Revenue, expenses, and employee compensation

Revenue

$5,789,261

Expenses

$5,792,631

Employee compensation

$2,882,770
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Julia Jenkins
President and Executive Director
$262,129
$243,797 No related comp$18,332
Annie Kennedy
Policy and Advocacy
$248,794
$233,456 No related comp$15,338
Megan Pinegar
Chief Operating Officer
$154,338
$144,613 No related comp$9,725
Jamie Sullivan
Sr. Director of Policy
$138,990
$130,486 No related comp$8,504
Mary Roth
Communications
$134,300
$122,579 No related comp$11,721
Britta Dornan
Communications
$128,809
$112,779 No related comp$16,030

Benchmark Employee Compensation

Non-Employee Board Members

Abbey Hauser
Director
Amrit Ray
Director
Cristina Casanova Might
Director
Emil Kakkis
Director
Frank Sasinowski
Vice Chair
Jennifer Bernstein
Secretary
Lisa Carlton
Director
Mark Dant
Chair
Merrill Friedman
Director
Richard Finkel
Director
Ritu Baral
Director
Stephen Groft
Director

Mission Statement

THE EVERYLIFE FOUNDATION FOR RARE DISEASES IS DEDICATED TO ADVANCING THE DEVELOPMENT OF TREATMENT AND DIAGNOSTIC OPPORTUNITIES FOR RARE DISEASE PATIENTS THROUGH SCIENCE-DRIVEN PUBLIC POLICY.

Revisions to this organization profile

July 23, 2025:
2024 Everylife Foundation for Rare Diseases 990 filed
August 2, 2024:
2023 Everylife Foundation for Rare Diseases 990 filed
July 11, 2023:
2022 Everylife Foundation for Rare Diseases 990 filed

Get an email when new compensation information is released for Everylife Foundation for Rare Diseases

Be the first to know when new IRS Form 990 data is published for this organization.

Related Jobs

View more jobs
Powered by Talroo
Report a discrepancy →